Tag Archives: depression

Depression Awareness Week – 2015

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This is the letter I wrote, but never sent to my MP. I never sent it because writing it took so much energy, that I couldn’t face going back and proof reading it, and by the time I was ready to do that, we’d completed the appeal and Greté had been moved to the Support Group. So apologies in advance for bad grammar, repetition and typos.

I wrote the letter the day we got back from the interview at the DWP, which is a mandatory aspect of being in the ESA Work-Related Activity Group.

“I appreciate this is a long letter, but it is written from the heart, and I implore you to read it.

Myself and my wife (Greté Evans) have just returned from a mandatory interview with an employee at the Job Centre. Firstly, I want to say that I have the utmost respect for the staff working there, and that despite the rest of this letter I have no complaints about how any individual has dealt with our case.

My wife suffers from a condition which used to be called Dysthymia, but is sometimes known as Persistent Depressive Disorder. The Wikipedia link for the condition is,

http://en.wikipedia.org/wiki/Dysthymia

My wife also suffers from a Panic Disorder, Agoraphobia and a number of related conditions. Additionally, she has chronic back pain due to an issue with her spine.

In the mid to late 90’s, while undiagnosed but still suffering from dysthymia, my wife continued to try and work. Sometimes those were paid roles, sometimes they were voluntary. However, around 1997 my wife’s health deteriorated and she was laid off from her last paid job. Although she was diagnosed (again) as being depressed, and given anti-depressants, the diagnosis was not for dysthymia and the anti-depressants in question were unsuitable.

After a number of months, Greté tried again to get work, with a temp agency, but during her first day suffered a severe panic attack and had to leave the office to which she had been sent. This crushed the last of her remaining self-confidence and over the next year or so, her health suffered even more greatly. Over the following 2 years there were periods in which she considered suicide as her only source of relief.

Over subsequent years, Greté had severe bouts of depression on and off, over the top of the constant dysthymia. Eventually, she met a GP who understood her condition and together they finally found a diagnosis for Greté (tragically, the GP was Dr Elizabeth Kinston). With the right medication and support, Greté has been able to manage her symptoms for a number of years now.

But she is not cured. Every day she battles depression, every day she battles panic attacks and crushingly low self-esteem. Some days Greté is able to go out to places she knows well, with people she trusts, and those people might think she’s perfectly healthy. Greté can go shopping to Tesco, but if something out of the ordinary happens, or the aisles are busier than she was expecting, she might well suffer a panic attack and have to leave. Other days she battles to even get out of bed.

During all of this, Greté has received various benefits, and until recently was receiving the non-means tested benefit introduced before ESA. During those periods we have both suffered the shame and dehumanising health assessments, carried out over the years by decreasingly qualified medical staff. In 2006 we appealed when Greté was told she was fit to work. Within minutes of the appeal board interviewing Greté, it was clear to them the decision had been made in error and her benefit was re-instated and back-paid.

Earlier this year, Greté was informed she would be moving to the new benefit system, and would need an assessment. We received the forms and completed them honestly, as best as we could. Within a few weeks Greté was notified she was being categorised and placed in the Work-related activity group. We were told we had 30 days to appeal.

But we didn’t know what to expect. Greté doesn’t want to spend her life not working. She already suffers from severe self-esteem issues and not being in work in the current climate and current ‘scrounger mentality’ government stance makes those feelings ever more acute. We both hoped that maybe the process would offer up some help, some assistance. Greté could speak to people who understood her condition and together they could work through the options and perhaps begin the process of understanding how, if possible, Greté would be able to get back to work.

This is all against a backdrop of my deepest fear. Greté’s condition means that she can’t handle change, confrontation, unexpected situations or some social interaction without severe panic. A panic attack at work so severe you can’t breathe (let’s not even talk about getting through a job interview), and leads to you running out of the building will only lead to a tough conversation the next day. So maybe Greté has a panic attack and a few days of severe depression and then goes back to work. Maybe it happens again a few weeks after, and another conversation with her manager results. But Greté’s illness prevents her from handling that as well, and she’s signed off for 2 more weeks. Combined together, this causes Greté’s ever present real illness to worsen, her self-esteem to crash and her anxiety to take over her whole day, and suddenly she’s considering suicide again as the only option.

Despite that fear, we didn’t appeal immediately, we waited and we went to the first interview with the DWP. Of course, Greté couldn’t go on her own, but I went with her and we listened to the member of staff tell us what this process entailed.

Her first comment was that most people miss the bit in the letter that says benefit is only paid for 365 days before becoming means tested. Indeed, we had both missed that. Greté immediately suffered a panic attack, began crying uncontrollably and would have left the building had I not been there to basically physically hold onto her. I got her calmed down, and we listened to the rest. Basically, there is no support, there is no officer who understands Greté’s mental illness. There is someone who can help you find work, but finding work isn’t the problem.
The issue is Greté being physically capable of attending an interview and holding down a job with her current illness without eventually becoming suicidal.

Even if we don’t engage with the process, and just go by the numbers, in a year my wife’s benefit will stop. I work full time, and earn a salary. I’m sure we’ll still be able to eat, but that’s not the problem. My wife’s illness leaves her with no self-esteem. She already considers herself, during the worst of her days, a burden on me, and those around her. The fact that she currently has her own money with which she can contribute to bills, gives her some sense of worth. When that last thing is taken from her, when she feels as worthless as she can, it will be the final act of a government that doesn’t care about her.

So today, while my wife recovers from her ordeal and tries not to slip into a further depression which may last weeks, I am going to start the process of appealing the initial assessment.

We tried to engage this process constructively, we wanted and hoped that we might get some help, and that Greté might get some support to work despite the significant challenges she faces. But it is clear to me that the process itself is not constructive, that actually it doesn’t care about the effect working for a living might have on someone’s health, it cares only about getting that person off benefit and into a job. Should they fall sick again afterwards, or indeed, God forbid, should they become so sick they commit suicide, the process doesn’t care and for a short time at least the person is off benefit and killing themselves slowly in a day job.

I will not allow anyone to make my wife more ill. No matter how healthy she appears day to day, the very act of working for a living could put her life at risk, and I won’t allow it to happen. Ironically, if she were in work right now, she’d be signed off sick due to the anxiety and additional depression the recent few weeks and months have brought on.

You may feel I am being melodramatic. I have no idea how much you know about mental illness, depression, anxiety or any of the other issues that myself and my wife live with on a day to day basis, but I promise you, there is no exaggeration here, no drama for the sake of it.
Just an amazing wife who suffers from a terrible, invisible illness.

I do not know what I expect you to do with this letter, I guess I just mostly want you to know how current policy is affecting real people.

Thanks for taking the time to read this.”

Depression Awareness Week – 2015

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My wife suffers from Persistent Depressive Disorder (Dysthymia) and does not work.  We appealed a decision to move her into the ESA Work-Related Activity Group in 2013, and that appeal was successful.  This is the e-mail Greté wrote, and rather than writing some long blog posts about Greté’s illness, I’m posting this to give you an idea of what she battles with daily.  Tomorrow, I’ll post a letter I wrote (but then never sent) to my local MP.  I’ll explain why I never sent it in that post.

Again for clarity, this letter is from and about Greté.

Dear Sir / Madam,

On the 6th November 2013 I (Greté) was placed into the ESA Work-Related Activity Group. I am writing to you, to formally ask you to look at the decision again.

I do not believe enough consideration has been given to my mental health and how both looking for work and then trying to hold down a job will affect me.

I tried to answer the questions in the questionnaire honestly, but feel they have not been reviewed fully in context. For example, I would not be able to attend job interviews on my own, and would be unlikely to be able to attend my first day at any new job on my own either. Which prospective employer is prepared to let me attend my first day at work with my husband or someone else I trust so that I don’t have a panic attack? Which employer would let me attend with someone for the first 2 or 3 months until I built up enough confidence and trust in the place of work and the people present so that I could go on my own? Who could even spare the time to attend with me in that situation? That is the reality of my mental health. Can I go to the local Tesco on my own? Yes, because I have been there literally hundreds of times before with my husband. Could I go to a shop I have never been in before? No, and if I were made to it is likely I would suffer a panic attack before I even made it in through the door.

My conditions (dysthymia, panic disorder, agoraphobia) are not cured. I am not well. I suffer from those conditions every day. At best, I manage my surroundings to try and contain the symptoms and ensure I don’t dip into a double depression. I thought that the work-related activity group would include support and counselling to enable me to begin to move towards the process of looking for work. However, in discussion with the Job Centre Plus staff (I attended the interview with my husband) it is clear that level of support does not exist. At best, the process would help me looking for work, but looking for work is not and has never been the issue. As it happens, I had a panic attack during that interview, despite the presence of my husband, and only his presence stopped me leaving the building. Instead, I just sat and cried uncontrollably throughout the whole interview.

The issue with the mental illness that I suffer with daily is that I can not deal with change, stress or pressure, and under those situations I am likely to have a panic attack and essentially ‘run out’ of the workplace. Perhaps, through some miracle, that would be tolerated once or twice, but it would lead to difficult conversations with the company, and those conversations in their own right would lead to more stress and anxiety.

Ultimately these situations would inevitably lead to further depression, self harm and potentially suicidal thoughts. I know this, because it is exactly what happened the last time I tried working in the late 1990’s. I ran out of the work place after suffering a panic attack on my first day, and the following months were some of the deepest depression I have ever suffered, including suicidal thoughts, which led to referral to a psychiatrist.

Although my condition is now fully diagnosed and managed day to day with medication, that only allows me to operate literally day to day. The pressure of work, interview rejection, deadlines, change, and social interaction would inevitably cause the symptoms of my ever present illness to flare up.

The mere thought terrifies me. The whole process of engagement from the ESA terrifies me. In the last month, my desire to self harm has never been stronger and it is only the safety of my own home and family that has helped me rein those feelings in.

I urge you to reconsider my case and place me in the Support Group.

Vay Kay Shon

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So, I’m off work for two weeks!  Other than being prodded by the NHS, no real plans.  It’s been a rough three weeks at work, covering a lot of call out, being the person in the office who gets asked all the questions you don’t want to get asked, but I survived, just.  It seems to be a common issue in March with lots of people taking holiday.  Last year was similar I remember.

It’ll take me a few days to get over it all and really relax.  The oddest thing happens first though – I get really down and pretty angry with the whole world, which is where I am today.  I’m lucky that Grete understands and doesn’t get too pissed off at me.

So a few days of this feeling and then I’ll be able to enjoy not being at work.

Got my letter this morning saying the blood test results are in, but doesn’t list what they are.  I may find out at the nurse appointment or I may need to ring the doctor.  I’m sort of hoping the bit where it said ‘this appointment is non-urgent’ means they don’t think my medication needs reviewing and hence the results are okay, but that may just be wishful thinking.

I really am not a nice person to be around when I’m in this kind of mood, I think Tracey may regret her choice of weekend for visiting.  Ah well.

Sodding cold

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Still coughing, still getting annoyed by it.  Have another headache today from the coughing.  Feel as though the cold is coming back which would be an officially bad thing[tm].

Grete had her dentist checkup today – and has passed with flying colours.  It’s the first time she’s had a checkup in five years and she was pretty worried.  On top of being worried about visiting the dentist anyway obviously.  So she was pretty relieved to find out she doesn’t need any work.  My wallet was equally pleased she didn’t need any work.  So just the £180 for me next week, and then probably another £100 or so when I can find the time and energy to go back.

We’ve got guests this weekend so we’re tidying (extra-tidying honest) the house – which means basically Grete is tidying the house and I’m blogging about it, but it’s like a shared experience.  Friday we have Tracey and her mum who are here until Sunday.  On Saturday they’re going with Grete to a craft fair in Birmingham and meeting Grete’s mum and aunt there, who’ll be coming back on Saturday late afternoon.  Lynda’s going with them, so she’ll be here Saturday morning.

The BBC news site has a story which strikes a chord with me and my NHS experiences.  The comments are well worth reading (even though they didn’t publish mine yet). Here’s a (long) quote from the article,

Last year a friend of mine had an appointment with her doctor. Her local bus route was disrupted by road works. So, she left half an hour before she really needed to so as to make sure she got to the surgery on time.

As it turned out, there were no delays so she went to the reception desk prior to intending to sit down with a magazine to await her turn to see the doctor.

When the receptionist spoke to her, this was her loud greeting: “You’re early. You don’t expect to be seen early do you?”

In front of a waiting room full of strangers, my friend told me that she felt embarrassed and belittled.

In a health service that treats thousands of serious illnesses every day and has been a foundation stone of our society for 60 years, this was no life or death matter.

Yet, it is highly unlikely that a member of staff in a store such as John Lewis would address someone in this way. The people served there are customers. The people served by the NHS are patients.

It’s worth reading the whole thing and the comments.  I can’t say enough how I agree with the general points made, and in the comments section many people agree with me that it’s not usually the medical staff that are the issue, it’s the administrative staff in the way.

Of course, sometimes it can be the medical staff, like the GP who told me to eat less cake and stop taking sugar in my tea (neither of which I did at the time) because I was now diabetic.  You shouldn’t have to fight both your illness and the establishment to get good treatment.

I could rant for hours about the terrible treatment Grete has had over the years with her depression and associated issues in the hands of the NHS.  I think the idea of a national health service is fantastic, and I wouldn’t want it to go away, but the processes and people around it need to understand more clearly that their role is to get people help, and that those people are already vulnerable, scared and in need of assistance.